Consumer led and co-production research in a world that’s not used to it: The consumer led research network

Stream: Rapid Papers 2
Date: Friday, 1 April 2016
Time: 11.15 am – 1.00 pm


The Strategic Plan for Mental Health in NSW has announced the establishment of a Collaborative Research Framework for Mental Health in NSW. A key principle underpinning this framework is ‘the engagement of consumers and carers at all stages of research, including its translation into practice and policy’. In this context a group of consumer researchers, led by Bradley Foxlewin, has established the ‘NSW Consumer Led Research Network’, an independent body, supported by the NSW Mental Health Commission. The Network has been established to support an environment for the discussion and development of consumer led mental health and drug and alcohol research activities, in NSW. The Network has held its first forum, entitled “Enabling consumer led and coproduction research in a world that is not used to it” which was attended by 75 people from three states in Australia. While the forum had a number of keynote speakers the emphasis was on gathering ideas for a forward momentum in consumer led and coproduction research. Some of the main themes emerging from the forum will be presented, as well as a rationale for the necessity of the further development of consumer led research.


Grenville Rose (Presenter), Consumer Led Research Network
Dr Grenville Rose is an Adjunct Lecturer at the University of New South Wales Centre for Social Research in Health, Consumer Led Research Network Committee Member, NSW Mental Health Commission. Dr Rose has worked in research and evaluation in the CMO sector for 8 years. Grenville identifies as someone with lived experience of mental health and substance use issues and thinks that the voice of the people directly affected by these issues can give us the clearest vision of future directions.

Katherine Gill, Uniting Recovery and Uniting Hope

Tim Heffernan, Illawarra Shoalhaven Local Health District

Yvonne Samuel, NSW Users and AIDS Association